Ben was born on Oct. 30, 2016 in Langley and has the symptoms of charge syndrome as well as atomic seizures. He passed away Friday morning, June 2.

‘Any amount greatly appreciated,’ to help grieving family

A GoFundMe page aims to support family of a infant boy who passed away last week

Ben Parsons’ life on Earth was cut short, but he was deeply loved, and will be deeply missed, by many.

The Langley infant passed away last Friday morning, June 2, seven months after he came into the world.

Son to Mike and Tina and baby brother to 16-month-old Jade, Ben was born on Oct. 30, 2016 in Langley and had the symptoms of charge syndrome as well as atomic seizures.

He was the size of a newborn baby at seven months old and was terminally ill before he passed.

“Our little girl has been hurt by watching her parents (go) through tough times, yelling, screaming asking why, why would this happen to a baby,” Tina shared. “He was so bright, so beautiful… I know he was different and maybe he wasn’t capable of being that of an average child, however he had something inside him — something beautiful. I know he got it from his father because their souls are so full of life.”

Tina added, “Regardless of his fate, he touched so many people. He made small things like moving his finger seem so amazing. In fact, it gives you a whole new meaning to the world.”

It was truly tragic to watch her son slowly slip away, Tina said.

“I felt it for a long time,” she said, “and it was enough to destroy a person. I love him more than words can ever begin to express. I am lucky to still have my husband. He is the light in which I can still see my son every once in awhile, and as for my daughter, she is my rock. She is so strong. I could only dream to be as strong as her one day.

Since Ben was born, the family travelled back and forth to Canuck Place Children’s Hospice.

“Every day is a constant scare, but sadly there’s nothing they can do but to watch him suffer,” wrote Chantal Crowell, who created a GoFundMe page on the family’s behalf.

While Tina was home with Ben and Jade, dad Mike had been working until last month, when their car was totalled in an accident.

Mike’s job required the use of a car and without one he’s now out of work.

“This fund is to help them out while they are struggling and spending all the time they have with Baby Ben, while he’s still here with them,” Crowell wrote on the GoFundMe page before Ben’s passing. “Any amount would be greatly appreciated.”

Visit the GoFundMe page at ‘

The family is trying to raise funds to pay off credit card debt and donate to Canuck Place Children’s Hospice.

Meanwhile Tina thanked Crowell for her ongoing support: “She saved my spirit.”

And while the family is facing major financial hardships, Ben passed along an important message.

“He showed us that life is short and to cherish what you’ve got,” Mike said.

Just Posted

Police investigate string of overnight fires in North Delta

Suspected arson caused damage to vehicles, signage in the area, Delta Police say

COLUMN: Technology gives me hope my father will walk again

Lokomat taught Michael Coss to walk again after brain injury – and you could help bring it to Surrey

Decision to opt out of Operation Red Nose made last spring, says Langley Gymnastics

ORN drivers in neighbouring communities will fill Langley/Surrey gaps as best they can

Curling competition cutting close ahead of BC Junior Curling Championships

Qualifiers for December’s championships come down to the decimal point

Theatre stuff from stolen trailer found strewn on Surrey roadside

‘It’s going to take a little while to go through it all and find out what’s ruined and what’s OK’

VIDEO: Two years in review with Cloverdale-Langley City MP

John Aldag sits down to talk about heritage, economics

Pine beetles from Jasper National Park moving into commercial forest

In 2014, beetle activity went from a few spots around Jasper’s townsite to rampant

VIDEO: Tragically Hip members, Alex Trebek receive Order of Canada

Newest recipients join 6,897 Canadians such as Christine Sinclair, Graham Greene and Mark Messier

AC/DC’s Malcolm Young dies at 64

‘Malcolm was a songwriter, guitarist, performer, producer and visionary who inspired many.’

‘I will now live in consistent fear’: Allan Schoenborn granted escorted leaves

The Merritt man was deemed not criminally responsible in the killing of his three children in 2008

Hammy the deer dodges conservation officers in Prince Rupert

The famous Prince Rupert hammock deer maintains his purple threads

‘No shirt, no service, no Canada’

Shirtless Tacoma man arrested after Canadian border officials say they found meth in rental vehicle

Nasty note on B.C. windshield sparks online outrage

Vernon’s Bailey McDonald is using a painful experience to start conversation about invisible illness

Delta-Richmond Operation Red Nose kicks off with call for volunteers

ORN uses volunteers to provide motorists who have been drinking a free ride home — in their own cars

Most Read